Cleft Palate Training Day 4: Operation!

Another day at Yekatit 12 for cleft palate training.  We had another wonderful class/lecture in the morning featuring interactive role-playing between TC students and the rest of the class.  The TC students role-played as patients while the other students acted as clinicians.  Each “patient” was assigned specific cleft palate speech characteristics, and was instructed how to respond to treatment.  This exercise proved extremely helpful, and we all felt more confident and competent when working with our patients later that afternoon.

After lunch, a few of us were lucky enough to observe a cleft palate repair on a 19-year-old patient with a “syndromic cleft palate,” as described by the surgeon.  It was fascinating to see a repair up close, as well as the musculature that we’ve learned about but not physically seen.  The patient we observed was quite unique, as the patient’s small oral cavity caused the levator veli palatini muscle to insert into the nasal septum.  Throughout the surgery, the surgeon explained the steps he was taking in the repair, directing our awareness to the presentation of the patient (oral care, jaw shape, etc.)

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Prepped for surgery

When we got back to the hotel, we met (along with cake and cookies) to watch the movie “Making the Crooked Straight,” a documentary that follows Dr. Rick Hodes, a man who provides medical care all over Ethiopia.  He provides free medication and raises surgery funds for patients with tuberculosis of the spine and other illnesses (or arranges for them to have surgeries in other countries).  Dr. Hodes and his work is truly inspiring, and if all goes as planned, we may be meeting him for dinner on Wednesday!

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Documentary screening party!

Finally, we ended the evening with a birthday celebration for our fantastic filmmaker/photographer Josh Hayes (happy birthday, Josh!).  It was a nice way to close a full day of training, clinical work, and cultural enrichment.

-Michael and Georgia

Parents and Palates: Nehemiah and Cleft Palate Training Day 3

1/11/15 Gregorian —– 5/3/2007 Ethiopian

Back to the wonderful Nehemiah Autism Center! This morning we held a parent training. To our delight, twenty parents and family members attended.  We incorporated a visual schedule as we did for the teacher training day to show what we worked on. And as we did that day, as each activity was completed, as a group we, in unison, exclaimed, “alekah.” For introductions, the parents shared something they loved about their child (i.e., “My child is as handsome as me,” “My child is affectionate and loving”) which made a deep impact on our day at Nehemiah. Social stories, which we (credit to Dr. Edmondes) had renamed Stories for Effective Communication (SEC) and communication passports were introduced. The parents were eager to create the SECs and communication passports for their children. They expressed their appreciation and how their child would benefit from these. GO TEAM TC!

One unforgettable moment was when we entered one of the classrooms and saw the calendars, name tags, and visual schedules we introduced at the teacher training. Teddy described that they had started using them in the classrooms right after they returned from Christmas break! SUCCESS!

Calendars, Nametags, and Visual Schedules!

After the training we were off t0 Yekatit 12 Hospital for our third day (half day to be exact) of Cleft Palate Training. We made it just in time for the therapy sessions. We split up into groups of 3-4 therapists-in-training. We saw roughly 15 patients. Different therapy techniques that were learned in class were applied. Each group created goals and homework for each client that would be seen the next day. It was a very productive and educational experience!

Back at the hotel, with no break, we had a mini lecture to make up for the first half of the Cleft Palate Training day we missed. Dr. Crowley made sure all the TC students take the quiz that was missed due to attending the parent training at Nehemiah Autism Center. LEVATOR VELI PALATIIIINI~~~ aka the muscle we will never ever forget.

Stay tuned for the remaining days we have left here in Ethiopia!

Love,

Özge (Ozzie) and Amika

TICCA & GGEAM <3

Cleft Palate Training Day 2: Getting To Know You

1/10/15 Gregorian – – – – 5/2/2007 Ethiopian

Greetings! Early this morning we met with our Ethiopian, Kenyan, Nigerian, and Ghanaian colleagues to initiate day 2 of cleft palate training and clinic. Josh, Lisa, and Jayne began by creating video tutorials with two of Ethiopia’s finest SLPs. These SLPs discussed how a variety of speech sounds are impacted by cleft palate, in simple, easy to understand language. Once complete, the videos will be added to those already on the leaders project website (leadersproject.org), so that SLPs with limited training in cleft palate and parents/guardians of children with no access to SLPs, can access the information and initiate a successful treatment program.

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Meanwhile in the classroom….

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Cate led an extremely interactive lecture on anatomy, during which students morphed into oral and pharyngeal musculature to pantomime movements of the vocal tract. An informative lecture for all!

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Lunch was again delicious, catered by the hospital. The time was spent getting to know our non-TC colleagues, sharing diverse cultural norms including cuisine, style, and of course speech and language concepts.

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We cleaned up lunch and prepped the treatment rooms for therapy. Two therapy sessions were conducted within each room! As such, preparation was strategic. As the patients arrived treatment groups rapidly assembled and treatment began! Students immediately implemented techniques learned earlier in the day; sometimes finding difficulty generalizing from the classroom to the treatment setting, however ultimately finding success and gaining confidence!

During stimulability testing, the students all reveled in watching patient’s faces light up in pride and amazement, as they listened to themselves produce certain sounds for the first time. Truly heartwarming and fulfilling, one reason we do what we do!

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Cleft Palate Training Day 1

1/9/2015 – or 5/1/2007 according to the Ethiopian Calendar

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“The big fly” in action

Josh Hays, our videographer (aka “the fly on the wall with a big camera”), finally arrived in Addis and joined the crew this morning. As soon as Josh loaded the van with his camera and equipment, we drove to Yekatit Hospital for the first day of cleft palate training.

When we got to the hospital, we were greeted by various professionals (SLPs, nurses, dental nurse, social worker, OT) gathered in the meeting room. Many of them were from around Ethiopia and other African countries such as Kenya, Nigeria, and Ghana. Our original plan was to have our lecture in the morning and meet the patients after lunch. However, we quickly realized that many patients were already at the hospital early in the morning waiting to receive Speech-Language treatment. So we (the TC students) and the rest of the professionals divided into groups to meet the patients after a short introduction.

Cate and Michael, the perfect incisive foramen duo
Cate and Michael, the perfect incisive foramen duo

We put on the white rubbery gloves and had our first encounters with the cleft palate patients. Patients’ basic info (name, age, etc.), case history (developmental, medical, surgical, etc.), cleft lip and palate profile, and detailed oral peripheral examination were then recorded on their individual assessment forms. When we came together to share the observed conditions of our patients, we realized how many of these post-surgical patients would need Speech-Language treatment services. Our first day of cleft training ended with a lecture on the anatomy and classifications of cleft lip and palate.

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Two more big events to note!

ONE, due to a list of unsatisfactory conditions, we decided to move to a different hotel. Thanks to Cate and Noel (Soliana)’s hotel hunting, we moved to Harmony Hotel. To share one thing – it was a first “real shower” I (Grace) took in Ethiopia and I wanted to live in that shower forever. It was quite an eventful move – more will be told over coffee and tea.

TWO, connections made!

Jayne here! Exciting collaborations happening in Ethiopia. We have met with a variety of U.S. and Ethiopian officials including education, political, and funding personnel. We discussed new ideas for general and inclusive education programs, grant writing, disability issues in Ethiopia, and how a group of 11 current and future SLPs might contribute to already impressive agendas. All parties were extremely open to collaboration. Stay tuned for progressive details!

Grace & Jayne

Amharic Book Illustrations

Below are the beautiful illustrations by Tina Yeung for our Amharic cleft palate books written by Alem Esheu Beyene. Each book elicits practice with a specific set of target phonemes for post-surgery cleft palate therapy.

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Ethiopian Amharic Cleft Palate Book Team

 

(Spanish) Cleft Palate Practice for K, G, Ñ

Este libro forma parte de una serie de libros hechos para niños con el paladar hendido reparado. This book is part of a series of Spanish language books written for children with repaired cleft palate.
Este libro forma parte de una serie de libros hechos para niños con el paladar hendido reparado. Se enface en la “K,” la “g” y la “Ñ.” Los niño que reciben terapia del habla después de la reparación del paladar hendido deberían practicar los sonidos 100 veces al día si quieren mejorar. Con estos libros los niños pueden practicar en casa con su familia o solo! This book is part of a series of Spanish language books written for children with repaired cleft palate. It focuses on “K,” “G” and “Ñ.” Children receiving speech therapy after a repaired cleft palate should practice speech sounds 100 times a day if they want to improve. With these books, children can practice at home with their family or on their own!

Downloadable pdf: Cataron Los Gallos for website .pdf

(Spanish) Cleft Palate Practice for K

Este libro forma parte de una serie de libros hechos para niños con el paladar hendido reparado. This book is part of a series of Spanish language books written for children with repaired cleft palate.
Este libro forma parte de una serie de libros hechos para niños con el paladar hendido reparado. Este libro se enfoque en la “K.” Los niños que reciben terapia del habla después de la reparación de paladar hendido deberían practicar los sonidos 100 veces al día si quieren mejorar. Con estos libros los niños pueden practicar en casa con su familia o solo!   This book is part of a series of books written for children with repaired cleft palate. This book focuses on “K.” Children receiving speech therapy after a repaired cleft palate should practice speech sounds 100 times a day if they want to improve. With these books, children can practice at home with their family or on their own!

(Spanish) Cleft Palate Practice for T, D, N

Este libro forma parte de una serie de libros hechos para niños con el paladar hendido reparado. This book is part of a series of Spanish language books written for children with repaired cleft palate.
Este libro forma parte de una serie de libros hechos para niños con el paladar hendido reparado. Este libro se enfoque en la “T,” la “D” y la “N.” Los niños que reciben terapia del habla después de la reparación de paladar hendido deberían practicar los sonidos 100 veces al día si quieren mejorar. Con estos libros los niños pueden practicar en casa con su familia o solo!   This book is part of a series of books written for children with repaired cleft palate. This book focuses on T, D and N. Children receiving speech therapy after a repaired cleft palate should practice speech sounds 100 times a day if they want to improve. With these books, children can practice at home with their family or on their own!
Downloadble pdf: TDN.pdf